|
Holistic Health
Topics
The home of holistic
medicine, orthomolecular
nutrition, and natural therapies
|
 |
|
Winner Editor's
Choice Award |
|
Australian Doctor Lists
ACNEM Australian Practitioner List
Go to the ACNEM referral list for an Australia wide list of
practitioners.
Dr Sandra Cabot
WHAS Clinics
|
Australian Compounding Chemists
New South Wales
Richard Stenlake
West
Lindfield Pharmacy
Fresh
Therapeutics
Ballina NSW
Complementary
Compounding Services
Now supplying
methylcobalamin!!
Victoria
Dartnell's
Pharmacy
South Australia
The Green Dispensary
See also
PCCA
|
|
Join the
Alliance for Natural Health to protect your health freedom before it
is too late!!!
|

The Global Threat to Alternative Medicines
5.
The Codex in Australia: Natural Health Products on Trial
|
|

For The Latest
Holistic Health News!!!
See
the Holistic Bulletin
|
|
Holistic Health Topics pays tribute to researchers such as
Roger Williams and Hans Selye, pioneers in medicine, biochemistry
and nutrition whose commitment to truth continues to set the
standard today.
|
|
|
About this Web Site |
|
Adrenal Type |
|
Asthma
Adrenal gland and,
B vitamins and,
Megavitamin B6,
Nutrition and, |
|
Australian Genetically Modified Foods |
|
Biochemical Individuality |
|
Body Types |
|
Chronic Fatigue Syndrome |
|
Ciguatera Fish
Poisoning |
|
Clinical Trials |
|
Evidence
Based Medicine |
|
Five
Elements |
|
Glyconutrients |
|
Health News and Links
|
|
Hypothyroidism
|
|
Medical Bias
|
|
Megavitamin B
Asthma and,
Mental Disorders,
Side Effects
|
|
Orthomolecular
Nutrition |
|
Life Expectancy
|
|
Reductionism |
|
Thyroid Type
|
|
Tridoshas |
|
VitaminB12
Cyanide and,
Nerve regeneration,
|
|
Yin, Yang, and Qi
|
|
|
| |
| |


[ Home ] [ Dietary Supplements or Functional Foods ] [ Darwinian Medicine ] [ Adaptation & Darwinian Medicine ] [ TGA & the Pan Crisis ] [ Pan Crisis ] [ Health Trends ] [ Medical Rationing ] [ Do Not Resuscitate ] [ Alternative Medicine Takeover ] [ Holistic or Reductionist? ] [ Orthodox Medicine ] [ Science Today, Quackery Tomorrow ] [ Integrated Medicine ] [ Medical Bias ] [ Health Topics ] [ Hypophobia ] [ Nutrition Breakthroughs ] [ Nutrition & Megavitamins ]
Rationing of Medical Resources or Medical
Discrimination Against the Sick:
Medical attitudes to the chronically ill
|
|
| |
1.
Future Trends in Health Care and Health
Expenditure
|
|
| |
Although many would say it is the era of science, it
is also unquestionably the era of chronic diseases (1,2,3,4,5: see also Health
Trends, When
Nutrition Became Quackery, Science
or Progress?). The lucrative treatment of chronic disease represents
the current “boom” area for technological and pharmacological
“health” care treatments (5).
While those who manufacture or supply such treatments are doing quite
nicely, funding organisations on the other hand, are not quite so happy
about current health trends.
An astonishing 75% of all health care expenditure is devoted to the care
and treatment of the chronically ill or disabled (1,2), while such patients cost 3.5 times more to treat than other health care
recipients (1). Treatment of chronic disease cost Americans two thirds of
a trillion dollars in 1990 (3) and by 2001 total health care costs had blown out to $1.4 trillion (31)
which represents "the fastest growth in a decade" (31). As has been noted by Booth and coworkers (3):
| “Our society is at war. Although it may not be commonly publicized
in this manner, make no mistake, our society, and even the
world’s population in general, is truly at war against a common
enemy. That enemy is modern chronic disease." |
These workers emphasise the fact that there has been (3):
| “a dramatic
increase in the incidence of chronic diseases in the latter part of the 20th
century” and “our health care system is headed for deep trouble
unless we soon find a way to implement better preventive measures against
the progression of chronic diseases.”
|
In spite of these alarming facts, scientists, researchers, funding
organizations, and governments continue to express little interest in
preventative strategies (2,3), preferring instead to wait until these
diseases become established and then utilize current symptomatic
treatments (2,3). Preventative strategies are actively discouraged by a
refusal to fund such research (3) and a refusal of health funds to cover
such strategies(2). In fact, doctors who bill Medicare for the use of
preventative strategies may even be charged with fraud (2).
It is abundantly clear that our current health care predicament is no
accident. It is the result of a longstanding policy to encourage the use
of lucrative symptomatic treatments which are known to offer no hope of
cure or prevention. Indeed, the ineffectiveness of such treatments may
account for their popularity amongst those with vested interests. The
precise mechanisms underlying the failure of current treatment strategies
are very well known, as I have considered elsewhere (see Holistic
or Reductionist?) and will not be considered in any detail in the
present discussion. Suffice to say that the entire practice of medicine is
based upon a presumption of failure, that is, intervention only after a
diagnosable disease has become established (3; see also When
Nutrition Became Quackery). Medicine has never been interested in optimum functioning and the
study of normality and prevention of disease (When
Nutrition Became Quackery). In fact science and medicine have persistently and continually devoted
precious little resources to defining and understanding optimal human
functioning and freedom from disease.
For all the publicity given to the alleged scientific nature of modern
medicine in the popular media, especially in view of recent allegations
about the allegedly unscientific nature of alternative medicine, few
mention the fact that the fundamental basis of medicine is grossly
unscientific (see When
Nutrition Became Quackery, Medical
Evidence or Medical Ignorance?, Medical Bias). As long as the clinical trials are properly conducted and the
statistics correctly tabulated it seems, we need not worry ourselves about
causes, prevention, or optimal human functioning (see
When
Nutrition Became Quackery). Such matters become decidedly unscientific when profits are involved.
While some may consider, in the light of the above facts, that medicine
has been an abject failure, this is not necessarily true. Clearly this is
only true if the primary aim of medicine is to cure or prevent disease. Medicine of course, as I have already indicated,
has never been structured in such a way as to maximize the chances of
disease prevention. If medicine is judged by its ability to promote the
use of rapid symptomatic treatments which produce highly lucrative
pharmaceutical and para-medical industries then it has been an outstanding
success.
Given this background, recent developments such as the corporatisation of
medicine, medical rationing, medical discrimination or cherry picking, and futile medicine,
are not too surprising. The structure of modern medicine continues to be
shaped by a funding system which denies funding for preventative
strategies (3). As has been emphasised by Booth and colleagues (3):
| "Fields of research
studying the biological mechanisms underlying primary prevention
of chronic diseases have been historically underfunded and
unfortunately now stand to receive even less support." |
While funding continues to favour
highly profitable symptomatic interventionist strategies it is clear that
modern medicine intends to continue to discriminate against those patients
who suffer from costly chronic diseases. Since symptomatic treatments are
intended merely to conceal (ie. make the patient unaware of) any signs or
symptoms of illness while permitting the underlying cause to continue (see
Symptom
Suppression), they are inherently expensive when used over the longer
term. As is well known, short term suppression of symptoms frequently
exacerbates the illness over the longer term (see Darwinian
Medicine). Chronically ill patients are simply too sick
and too costly to treat with ongoing symptomatic treatments, especially in the bold new world of medical
rationing and corporatised
medicine.
This article will focus upon some of the results of this deliberate bias
against a preventative cause based scientific system of medicine.
|
|
| |
2.
Medical Rationing, Cherry Picking, and Other Fruits of Medical
Progress
|
|
| |
a) Medicine Seeks to Avoid the Sick - Medical
Rationing
While
medicine has been busy avoiding any serious preventative or cause based
approach to health care, the spiralling and inevitable increase in the
incidence of chronic diseases finally attracted the attention of
bureaucrats and those who are responsible for administering and funding
medical expenditure. With health care costs approaching a trillion dollars
it seems that it may have been the economists and bureaucrats who were
first to realize there was something seriously wrong with our health care
system. In view of the continually escalating costs of
symptomatic or non-preventative forms of health care, costs that are the
direct result of the ineffectiveness of medicine’s symptomatic interventionist
approach, it is hardly surprising that health authorities now seek to
ration medical resources.
We have come a long way indeed from the early
days of medicine's drug paradigm of disease treatment when pharmaceutical
drugs were claimed to be a panacea which would ultimately cure all man's
health problems. Now we cannot afford either the drugs or the epidemic of
iatrogenic diseases which they have caused
(see Holistic
Medicine Sets the Standard for Safety).
It
is claimed, because of the rate at which health care costs are escalating,
that rationing is inevitable (17,18,19,20,31).
Since rationing
has apparently become an economic imperative,
it is clearly the economists and the bureaucrats who will increasingly
decide which patient gets what treatment (31).
However the fact that medical rationing simply involves deliberate discrimination against
those who are deemed to be too sick or costly to treat (6,7,8,9)
has resulted in a tendency to avoid the term "rationing" in preference
for more misleadingly soothing
terms such as resource allocation.
Rejection of patients suffering from expensive chronic illnesses in
preference for more profitable and
easily treated patients has also been termed “cherry
picking” (6,7,8,10,11,15,26,27,28).
Regardless
of which term is used to describe it, the
tragic end result of such medical discrimination is highlighted by
the case of the Port Macquarie woman who was sent home from hospital
because she was too sick to treat (9). This incident occurred in an
environment of medical corporatisation where concern about profits rather
than the quality of health care has become the bottom line (7,8,14). In
fact, the privatisation of Port Macquarie hospital was followed by
numerous reports of a reduction in the quality and availability of health
care resources (14). Not surprisingly, for profit hospitals have gained a
reputation for providing a lower standard of health care and a preference
for high profit rapid turnover procedures (15,16).
The
point cannot be overemphasised that the push for medical rationing is a
direct result of the ineffectiveness of medical therapies, particularly in
regard to the treatment of chronic illnesses. The popular use of the term
"futile care medicine"
underlines this fact. If medical treatments had been demonstrated to be
curative then the question of rationing surely would not have arisen.
Although rationing therefore, is simply a confession as to the uselessness
of medical treatments, it is curious that supporters of rationing seem to
prefer to discriminate against patients rather than discriminate
against medical treatments. While there seems little point in
administering useless treatments (although most doctors and scientists
would probably disagree, citing the placebo effect) patients certainly
should not be blamed for the determination with which doctors seek to
avoid the use of other alternative therapies.
Discrimination against patients on
the basis of the treatability or profitability of their illness however, is only the first
step towards even more worrying types of discrimination. Once doctors and
health authorities are given the power to decide who is “worth”
treating then any type of excuse may be used to justify refusal of
treatment. For instance, as long ago as 1993 the National Health and
Medical Research Council (NH & MRC) endorsed the use of (12) “social
worth criteria”
such as “the patients lifestyle and personal morality and his or her
value to the community” as grounds for assessing the suitability of
patients for certain treatments. Apparently, if the doctor disagrees with
the patient’s morality or lifestyle, or considers he/she is of little
value to the community (value to family or relatives is apparently
irrelevant), then the patient would be considered not worth treating.
While there may be good arguments for treatment refusal in specific cases
does this justify granting the power to doctors and health authorities to
assess the worth of patients? Does
the ineffectiveness and costliness of medical treatments justify giving
doctors the power to decide a patient’s worth?
In spite of these guidelines by the NH and MRC, according to the Minister
for Health, Tony Abbott (13): “I’ve got to say that I am very
uncomfortable with the concept of the deserving and undeserving sick.”
Of
course any decision to inform a specific patient that it has been decided
that he/she is simply not worth treating is not likely to be very popular
with the patient and his or her relatives. This is also clearly true of
the wider community which would not easily accept such rationing
decisions. Realisation of this fact has led to suggestions that rationing
decisions should be made behind closed doors, remote from public scrutiny
(31).
The public it seems, should have little or no say in (or even knowledge
of) rationing decisions (31)
although it has been suggested that highly selected members of the public
could be chosen to form a (31)
"citizens jury" which could offer some token
representation of community feelings. Rationing decisions are clearly made
more easily by economists and bureaucrats who are most remote from the
suffering of individual patients.
The potential unpopularity of rationing
amongst the general community has led to moves to make rationing more
invisible or “covert” (23,24),
also known as (31)
"implicit rationing". Covert rationing is the rationing you
are having when you are having no rationing. It’s aim is to deceive and
mislead. To politicians any mention of open medical rationing would be
political suicide (23). However, while politicians may prefer covert
medical rationing since this type of rationing places the medical
profession in the front line when it comes to responsibility for rationing
decisions (ie. denying treatment to the sick), it is for this very same
reason that the profession undoubtedly prefers open rationing. The medical
profession would no doubt prefer to offload responsibility for rationing
decisions onto politicians by bringing the whole matter out into the open.
The choice between open rationing and covert rationing simply boils down
to whether the public should be told the truth or whether they should be
deliberately deceived. The choice, it is claimed, is not between open
rationing and no rationing, but rather between open rationing and covert
rationing (25,31). This presupposes of course that rationing is inevitable
due to the fact there is no hope that scientific medicine will ever cure
or prevent most chronic diseases.
Since the essence of rationing is simply to avoid treating the sickest
patients it is interesting to observe some of the covert means which may
be employed by health maintenance organizations (HMO’s; see 29) to
achieve this end. The first strategy they utilize it seems is to use
cherry picking or “skimming” to establish disincentives to
deter the sicker patients from signing up (28). This is claimed to
increase profits for HMO’s in two ways (28): “once by enrolling
only patients who would probably not need medical care; and again by
driving the sick into high risk plans – causing the premiums of those
plans to rise, and thus pulling up the HMO’s premiums automatically.”
The point should be made most emphatically that
medical rationing is being justified here on the grounds of
increasing profits, NOT reducing costs. The profit motive however
ultimately drives up medical costs by encouraging the use of high profit
rapid turnover procedures and discouraging cause based preventative
treatments (14,15,16).
If all else fails and some patients with expensive chronic illnesses do
manage to sign up with HMO’s then the next strategy is to ensure that
their stay is as unpleasant as possible by (28) “allowing layers of
obstacles to form between those patients and the care they want.”
What is required is to (28) “let the system bog down in red tape for
the ill.” This may be achieved by (28,30) “managing the
information distributed to patients regarding services” and by
deliberately imposed “lag periods”. In regard to lag periods,
Australians will be very familiar with the blowout in public hospital
waiting lists which has occurred during the push to promote privatisation
of the health care system and increased use of private health funds.
There is no doubt that those responsible for covert rationing have turned
deviousness and public deception into a highly developed art form. The
devious means they have employed to falsely convince the public that chronically ill patients
are not seen simply as a negative influence upon their bank balance
is amazing.
Perhaps the most
visible form of medical rationing involves the elderly and the terminally
ill. Denial of treatment or “do not resuscitate” (DNR) orders
are part and parcel of modern scientific medicine. This has been termed
“futile care medicine”.
b)
Medical Age Discrimination and Futile Care Medicine
Most
people would probably expect that medicine has been deliberately
structured in such a way as to favour treatment of those in greatest need
and there is absolutely no doubt that, as a group, it is the elderly who
most fall into this category. However the reverse is true. Modern health
care actually seeks to discriminate against the elderly (32,33,34,35,36).
Age limits have been placed on various types of treatments (32)
and geriatric beds in hospitals are being reduced (32)
even though chronic illnesses are increasing and the population is ageing
(see Health Trends). Numerous patients have
noticed that they are treated differently after they reach the age of
fifty (32).
Ageism is said to be (33)
"pervasive in health care."
It is
interesting to note that one significant area of age discrimination
involves clinical trials for drugs - the elderly are consistently omitted
from such trials (33,34,36).
This is particularly odd given the fact that the elderly are the biggest
users of prescription drugs (33)
and they are also particularly susceptible to the side effects of drugs.
This susceptibility to side effects would ensure of course that to include
the elderly in drug trials would result in more negative trial outcomes
and a negative effect also on the potential profits of drug companies.
Another
area of discrimination involves the use of hazardous surgical procedures
in already frail elderly patients. If the decision to refuse such
procedures is based upon the perceived risk to the patient rather than age
per se then clearly such decisions may be in the patient's best interests
and would therefore be totally justified. However, denial of treatment
because of the hazardous nature of modern medical treatments does raise an
interesting issue since the aim of medicine is claimed to be to do no
harm. If medical procedures have become so hazardous that they cannot
be used on those most in need surely there should be medical
discrimination against the treatment, not the patient. If
treatments are so hazardous then surely medicine should be urgently
restructured and undergo a fundamental change in direction and return to
their basic aim of doing no harm. The urgency of such a move is
highlighted by the fact that no one knows whether many modern medical
techniques actually work and benefit patients since there is little
interest in actual health outcomes (45).
Even with cardiovascular treatments there is a lack of data on real life
health outcomes (48).
They just don't know if the therapy actually works. Medical procedures it
seems, have traditionally been carried out on a geographical or class
basis, irrespective of either need or outcome (45,49)
Considering
the astonishing iatrogenic potential and ineffectiveness of modern
medicine, combined with the current boom in knowledge confirming the
importance of traditional holistic teachings regarding diet, nutrition,
and lifestyle in prevention of many diseases ( see Nutrition
& Megavitamins, Nutrition
is for the Birds, B Vitamins), the
incentives for a fundamental change in direction for modern medical
science could not be greater. Indeed, the astonishing iatrogenic
effects of modern medicine
(see Holistic
Medicine Sets the Standard for Safety),
particularly involving the elderly (46;
see also The New Paradigm),
the total cost of which to all Americans is estimated at $29 billion
annually (47), are
cause for absolute alarm and immediate fundamental change to the direction
of medicine. Fundamental change to medicine should not be driven by
bureaucrats and economists however, but rather by the compassion and
concern of all medical professionals.
In
spite of all the evidence of ageism in health care, according to Gilhooly (36)
there is little of what may be termed hard scientific evidence. Gilhooly
points out for instance that under treatment of the elderly may not be
because of age per se but rather because of the chronic nature of many
elderly illnesses or the fact that such patients may be considered
"vulnerable". This may well be true but does this make it
acceptable? Surely we should not be seeking to justify or excuse medical
discrimination. The seriously ill patient who is being under treated would
no doubt express little interest in whether the discrimination was due to
age, "vulnerability" or chronic illnesses.
Although
Gilhooly (36)
does concede that "there is some evidence that elderly people are
routinely and systematically excluded from clinical research" she
justifies this discrimination on the basis that the "co-morbidity"
or various chronic illnesses which frequently afflict the elderly
predispose them to adverse drug reactions and therefore increased
liability to drug companies. Concern about liability to drug companies is
commendable, but how about concern about harm to the health of patients?
According to Gilhooly (36)
drug companies may simply be trying to "protect patients from
potential harm." They may also be trying to maximise profits.
Gilhooly concludes (36):
"perhaps it would be better to view exclusion of elderly people
from clinical trials as evidence of positive age discrimination."
In other words it seems, drugs are so hazardous to the elderly, the group
that uses them the most, that these hazards should be reserved for the
general community following marketing of the drug. Such is the nature of positive
discrimination. Doesn't this positive discrimination also
discriminate against the younger patients?
The reasoning here is indeed difficult for the layperson to follow.
Drug trials it seems should be biased towards a positive outcome (see Medical
Bias) so that adverse or toxic effects are reserved for the general
community and not trial participants. The patients who are most likely to
use the drug (ie. the elderly) should also be excluded from trials so that
only those most unlikely to take the drug are actually included. In short,
these much heralded scientific drug trials should apparently be constructed so as to
depart as much as possible from reality. As I have noted elsewhere,
deliberate medical bias is
intended to deceive and mislead (see Medical
Bias), a fact which underlines just how unscientific and
uncaring modern medicine has become. Far from disappearing from medicine,
blatant commercial bias seems to be increasing (see Medical
Bias). It is this type of attitude which has contributed to the
current epidemic of iatrogenic diseases (see Holistic
Medicine Sets the Standard for Safety).
Closely
related to medical rationing due to age is the matter of "futile care
medicine" or "end of life care" (37,
38,
39,
40, 41, 44).
According to Smith (42): "Futile Care Theory is the bioethical
maxim that gives doctors the right to refuse wanted life
sustaining treatment based on their perception of the quality of
the patient's life." In other words futile care medicine relates
to (43) "the patient who is demanding care that the medical
establishment has deemed futile." According to Smith (38) the definition of futile care is changing
and it is now more "about subjective value judgements by medical
professionals rather than physiological outcomes." Or, in the words of
Barbara Simpson who has personally experienced the tragic consequences of medical
futility (44):
| "The dirty, little secret
is that all medical personnel are being taught that medical
treatment can be stopped when the doctor (aided and abetted by
ethics committees and insurance companies) decides that you're
going to die anyway so they're not going to do anything. Well,
they do say they'll give you pain pills. I guess starving and
dehydration is a bit uncomfortable, especially towards the end.
The shocker is that educated, professional people actually
teach this to students, lecture this to peers, promote this to
those who make final decisions, and use this as a guideline for
insurance coverage.
Ah yes, money. It is cheaper after all, not to treat
someone. And it's cheapest of all, if the patient dies! Hey, when
you're dead, they don't pay anything! Wow, what a concept!
The name for this concept is "Futile Care." When
it happened to my father – the doctor cut off all
"medication," including hydration (since when is water
considered "medication"?) – one of the doctors told
me, that "some people call it 'benign neglect.'" He
quickly added that he didn't like the term, but he did nothing to
prevent it. Shame on him. And my father is still dead." |
The potential consequences of futile care medicine have also been
noted by Smith who cites the case of a baby (38) and a teenager
(41) who would have died if
doctors had had their way.
Futile
care medicine, which is introduced into hospitals rather covertly (39,41)
by hospital ethics committees, as no doubt are other shameful health care
reforms, involve making patients (41) "dehumanised
and viewed as parasitic drains on limited health care resources."
Medical bioethics committees it seems, have (39) "largely
abandoned the sanctity of life ethic"
so that now "a new medical
hegemony is arising, one that proclaims the right to declare which of us
have lives worth living and are therefore worth treating medically, and which
of us do not."
The futile care movement has been described as the beginning of a (40)
"planned campaign among medical elites to impose health care
rationing."
.The rationale commonly used to justify futile care decisions (ie.
discrimination) is termed "distributive
justice"
(41,50).
Distributive justice refers to the primacy of the group over the
individual (41,50).
Patients are seen collectively rather than as individuals so that
treatments and costs must be shared and one patient is not entitled to a
treatment if this would make the treatment unavailable to someone else who
is considered to be of greater "worth" or have a greater need (41,50,51,52).
Distributive justice seeks to abandon the primacy of the individual so
that (51):
| "The individual doctor
and individual patient, together, no longer comprise the basic
nuclear unit of health care.
Doctors and patients have been separated from one another;
separated and marginalized, reduced to ciphers.
They have become mere commodities in the vast health care
marketplace. And when a
commodities trader is dealing in pork bellies, she’s only
concerned about buying, selling and thus maximizing her profit on
large quantities of pork bellies.
Concern for the careful handling of the individual pig
never crosses her mind." |
As
has been suggested by Hall and colleagues (52):
| "We propose that devotion
to the best medical interests of each individual patient be
replaced with an ethic of devotion to the best medical interests
of the group for which the physician is personally responsible." |
In
a recent interview, Dr Bob Wright, of Sydney's St Vincent Hospital, agreed
that chronically ill patients act as (13)
"bed blockers" in the hospital system and prevent other
patients from accessing much needed resources. According to Dr. Wright (13):
| "Any inappropriate person
keeps out someone who you can really do something for. For
example, some young breadwinner who has had a motor vehicle
accident who has trauma and that sort of thing and you really feel
you can put them back on their feet and they'll be able to go back
and look after their family, but we can't fit them in." |
Dr
Wright noted that chronically ill people act as bed blockers (13)
"because these people usually take a long time to die."
He added that he didn't "think its good for anyone to live longer
than they should." In stark contrast are the words of Franklin a
decade earlier (53):
| "...allowing physicians
to withhold life support and resuscitation because they feel it is
futile, no matter how beneficent their intentions, would be an
unwarranted step backwards toward the type of paternalism modern
American society has turned away from. If we agree that all
professional ethics must, in some way, be responsive to the
society that profession serves, then in these most critical
situations, the final decision must rest with the patient." |
The demeaning term "bed blocker" is of
course reserved for those patients whom doctors are unable to offer
effective short term treatment and who therefore are seen as displacing
other, perhaps more profitable patients, from acute care beds (117,118).
The need to demean or blame certain patients for taking the beds of other
patients is the result of bureaucratic attempts to restrict the number of
hospital beds and therefore ensure there will be insufficient beds for
everyone (117).
In our modern scientific health care system however, there is more
interest in 'sanitising' the term bed blocker to disguise its true meaning
(118)
rather than blame those who are really responsible for deliberately
seeking to prevent patients from receiving treatment.
It
is clear that medical attitudes are changing dramatically and very
quickly. Perhaps the matter is best summarised by Wesley Smith (41):
| "Thus medical futility is
not an end but rather the beginning of a thousand-mile journey
leading directly to society-wide health care rationing-a
euphemistic term for medical discrimination, based on subjective
quality-of-life criteria, against patients who are elderly,
expensive to care for, disabled, or dying. Eventually, this will
include all of us. We ignore the threat of futile care theory at
our own peril." |
|
|
| |
3.Terminating Futile Care and Rationing: solutions to the current
health care crisis
|
|
| |
a) Abandon the Sick and Treat the Healthy: why on
earth has alternative medicine become so popular?
It is abundantly clear that to rectify the
current problems which plague our health care system and remove any need
for rationing we must first identify and remove the underlying cause of
the problem. Claims that rationing is inevitable, which emanate
predominantly from economists and bureaucrats, certainly do not address
the cause since they offer an economical solution for what is essentially
a medical problem. Such suggestions are intended to conceal symptoms while
permitting the underlying cause to continue.
It is clearly the proliferation of chronic illnesses and the
ineffectiveness of medical therapies which is at the root of the current
explosion in health care costs. The high cost of medical care today is not
caused by "advancements" in health care techniques as is
commonly suggested. If medical "advancements" are synonymous
with increased rates of chronic disease and increased need for
medical services then we need to progress in exactly the opposite
direction if we are to address the current health care crisis. We must
seek to reduce the NEED for medical services rather than continually seek
to reduce the availability as the need increases.
As I have noted elsewhere (see Science
or Progress?) the ineffectiveness of medicine is so consistent and
predictable that economists can reliably predict increasing health care
costs well into the future. In fact, such is the failure of medicine that
even the rate at which costs will escalate can be reliably predicted (see Science
or Progress?). In all such predictions it never seems to be asked;
what if medicine cures heart disease? or what if medicine prevents cancer?
or what if medicine conquers diabetes? or what if medicine eliminates
iatrogenic diseases? Economists and bureaucrats know that these diseases
will continue to proliferate and it is because of this realisation
that they seek to reduce the availability of medical services. Even though
iatrogenic illnesses alone are estimated to cost the US $29 billion
annually (47)
modern experts prefer to reduce treatment availability to the sick rather
than confront the fundamentally dangerous and ineffective nature of modern
medicine. Iatrogenic illness seems to attract a very low profile indeed
amongst doctors, scientists and economists, regardless of cost.
Evidence of the dangerous (47; see also Holistic
Medicine Sets the Standard for Safety) and ineffective nature (54,55,
56,
57,58,59,60; see also
But What
About efficacy?, Health Trends, Science
or Progress?) of modern scientific
medicine is indisputable. According to Doust
and Del Mar for instance, in an interesting article entitled (54) “Why do
Doctors use Treatments that do not Work:”
| "One of the surprising
things about James Lind's celebrated trial of citrus
fruit for scurvy was not just that he ignored the evidence
from his own trial but that in clinical practice he continued
to advocate treatments that he himself had found ineffective,
including those containing sulphuric acid. The
history of medicine is replete with examples of
treatments once common practice but now known not to
work—or worse, cause harm. Only because the French
surgeon Paré ran out of boiling oil did he discover
that not cauterising gun shot wounds with it created
much less pain and suffering. Leeches and blood letting
were used for thousands of years for almost everything. Attempts
to show that they were ineffective were resisted with great
passion by the medical profession. More recently, we
have had treatment with insulin for schizophrenia and
vitamin K for myocardial infarction.
In case we are all feeling too smug
about silliness in the bad old days, we have the recent crisis
on finding that hormone replacement therapy does not prevent
cardiovascular disease. Why do we
still use ineffective treatments?" |
However, even in spite of all the available evidence there are still
those who unquestioningly support the “wonderful advancements” of
modern medical science. But on what evidence is this support based? Where
is the evidence of the numerous chronic diseases which are disappearing
from modern Western society? And where is the evidence that doctors and
drug companies are becoming redundant as need for medical therapy
diminishes? It is not necessary to conduct clinical trials to assess the
effectiveness of modern medical techniques since the results of real life
clinical trials conducted on billions of people throughout the world are
abundantly clear. Yet, even in spite of all this there are many doctors
and scientists who suggest we should discriminate against the sick rather
than concern ourselves about the safety and effectiveness of modern
medical methods.
To science it seems, the results of small scale highly selective short
term trials are much more significant than real life trials carried out on
billions of people for the past fifty years. Such is the nature of
scientific evidence.
In all of the discussions and literature proclaiming the inevitability of
medical rationing the fundamentally dangerous and ineffective nature (see Holistic
Medicine Sets the Standard for Safety, Health Trends
) of
medicine never seems to be mentioned, even in spite of the astronomical
costs of iatrogenic illnesses. The fact that modern scientific treatments,
far from actually curing patients, are actually causing an enormous burden
to modern society, in costs suffering and deaths, is strictly avoided.
This is all very surprising, especially given the fact that increasing
scientific evidence indicates that alternative medicine therapies which
offer more hope for the prevention of various chronic diseases (see Health
Trends, Nutrition
& Megavitamins, B Vitamins, But
What About Efficacy?) are much
safer and cheaper than the high tech gadgetry of modern medicine.
Using the principles of distributive justice
where the sickest and costliest patient is the one who is penalized the
most one would also think that the doctor or hospital causing the greatest
financial burden to society from the use of costly treatments and
resultant iatrogenic illnesses would also be the one which is penalised
the most. Somehow however, a different sense of justice seems to apply in
this case. While patients must carry the burden of the physiological cost
of harmful or ineffective treatments, and they are discriminated against
because of the financial cost of treatments, current “justice”
determines that doctors, hospitals and treatment providers should suffer
none of these penalties.
This type of health care policy creates a situation whereby a patient who
develops an iatrogenic illness may ultimately be abandoned by doctors and
hospitals because the cost of treatment is too expensive and the money
could be better spent on other healthier (ie. patients who have not become
ill from medical treatments) patients. According to the principles of
medical rationing, a doctor who causes a patient to become chronically ill
because of surgical complications or adverse drug reactions should then be
able to use so called distributive justice to justify abandoning any
further treatment of the patient. As a general rule, the sicker the
doctor causes the patient to become, the more the doctor is required to
abandon him/her and devote the resources to other healthier patients –
unless and until they too fall victim to iatrogenic illnesses.
But shouldn’t doctors and hospitals have to clean up their own mess?
Why is there such a push to make doctors and hospitals so unaccountable?
Should doctors and hospitals that deal with human lives be less
accountable for the problems they create than plumbers or mechanics? Where
is the incentive to produce a safe health care system free of iatrogenic
illnesses when there is such a determination to ensure that doctors and
hospitals are unaccountable?
Acceptance of responsibility is one of the absolute foundations of a
safe, successful and orderly society. Especially when we are dealing with
human lives, denial of responsibility is a recipe for chaos. Modern
medical science has created an enormous iatrogenic mess and they should be
compelled to clean it up (if they do not wish to do so voluntarily) before
there is the slightest mention of discriminating against the sick.
How much more illness
should medicine be permitted to create before accountability is enforced?
If medicine were required to clean up their iatrogenic mess, and required
to research the underlying reason/s why iatrogenic illness is one of the
fastest growing types of illness in modern society, then the key to a cost
effective safe health care system may become obvious.
One of
the most tragic examples of iatrogenic diseases may well be the current
epidemics of heart disease, syndrome X, diabetes, adrenal disorders, and
respiratory diseases (see Health Trends) which
may all share a common cause. According to increasing scientific evidence
all these diseases may result from low birth weight caused by inadequate
nutrition during pregnancy (96,97,98,99,
100,101,102,103,
104,105,106,107).
But 50 years ago modern medical science was advising women to deliberately
practice semi-starvation during pregnancy to ensure they would give birth
to a smaller baby and hence have an easier delivery (108,109). And medical
experts continue to wonder why there has been such an epidemic of chronic
diseases in the latter half of the 20th century. And medical bioethicists,
bureaucrats, and economists seek to withdraw treatment from the
chronically ill because of costs.
There
is no better example of the possible tragic consequences of medicine's
short sighted symptomatic approach to "health care". The fact
that deliberate iatrogenic foetal malnutrition may be a significant factor
in the current epidemic of chronic diseases should be headline material,
but yet it rarely receives any mention whatsoever. The "costs"
of this irresponsible nutritional advice would be expected to be most
prominent in those who are now 50 years of age or older. Unfortunately we
must all pay the price for the disruption of the learning process which
occurs when health authorities seek to deny or conceal the truth.
According to the available scientific evidence alternative medicine
offers a very practical means of significantly reducing two of the costliest
aspects of health care, namely chronic illnesses and iatrogenic illnesses,
and yet it never seems to be mentioned by those who seek to reduce costs
by introducing medical rationing. This is indeed difficult to understand
unless of course promoters of rationing are more interested in maximizing
profits rather than reducing costs. One would think that doctors,
scientist, bureaucrats, and economists would be pushing for an urgent and
fundamental restructuring of modern medicine, particularly education and
training, aimed at emphasizing the importance of safe preventative
alternative medicine techniques and discouraging the use of costly and
dangerous medical drugs and surgery. Of course preventative techniques
will not only reduce costs but ultimately they will also reduce profits
and this may be a considerable disincentive for those whose interests are
not consistent with patient welfare.
In all these decisions about health care of course, it is the patients,
the recipients of health care
services, who have the least say. The only vested interests of patients is
towards elimination of disease and restoration of health and, ultimately
therefore, a consequent reduction in the size of the health care industry.
The health care industry on the other hand, those who are actively
involved in making decisions about the direction of health care, have a
vested interest in ever increasing use of highly profitable symptomatic
medical procedures and a reduction in the use of more costly less
profitable procedures. To them, profit is the bottom line. Their
livelihood will be threatened by effective preventative techniques which
reduce the total burden of human suffering.
What is clearly needed is more patient input into the decision making
process. If the ultimate aim of health care is to conquer disease and
eliminate human suffering then patients are the only group with a vested
interest in a totally positive outcome. Unless our prime consideration is
profits it makes no sense at all for the primary decision makers to be
those who have a vested interest in illness and perpetuation of human
suffering. They cannot afford to be successful. It should be noted here
that the current success of alternative medicine is in fact due to
consumers, certainly not doctors and scientists who have traditionally
adopted a very negative and antagonistic approach to such therapies and
all who support or use them. In spite of the medical opposition to
alternative medicine however, continued public use of such therapies has
resulted in scientists increasingly, if not reluctantly, confirming their
effectiveness.
It is clear from the above facts
that the logic used by those who seek to reshape our health care system
goes something along the following lines.
| The
more ineffective and hazardous that medical therapies become, and
the more illnesses that therefore proliferate, the more the sick
should be discriminated against in the interests of reducing costs
and maximising profits. The fundamental nature and direction of
medicine should never be questioned when costs can be reduced by
making medical resources less available to the chronically ill.
The chronically ill should be seen as bed blockers, medical
parasites and a negative influence upon profits. Discrimination
against the chronically ill should always be preferred to
discrimination against the fundamental nature of medical
treatments. To this end the
primacy of the individual should be diminished as medical
therapies continue to fail. |
The evidence is clear. The first step to reducing costs and creating a
more cost effective health care system is to focus increasingly upon the
use of natural preventative treatments and actively discourage the use of
harmful surgical and drug band-aid therapies. The answer is NOT to seek to
discriminate against the sick as orthodox medical therapies continue to
fail, but rather to discriminate against the use of such treatments by
changing to safe cause based preventative therapies.
b) When Caring Stops - whistleblowers incorporated
One of the primary reasons that our health
care system is in the deplorable state that it is is because of the
culture of silence, mateship, and cover-ups which are so prominent within
the medical profession (62,63,64,65,66,67,68,69; see also Holistic
Medicine Sets the Standard for Safety). Deliberate medical bias
is another way in which doctors and scientists seek to deceive the public
and conceal the truth (see Medical Bias). The primary purpose of
this culture of deceit is to prevent accountability and to conceal the mistakes,
hazards and ineffectiveness of medical treatments. This culture of silence has two
vitally important side effects. Firstly, it interferes with, or totally
destroys, the capacity of the system to learn and benefit from medical
mishaps and shortcomings. Secondly, when problems do occur the refusal to
formally acknowledge these problems prevents the system from responding
appropriately and introducing effective corrective measures. We should be
seeking to learn from our experiences not simply denying that they
occurred.
Ideally the virtues of caring and compassion
and the desire to minimise suffering and prevent deaths should ensure that
health care professionals have the best interests of patients at heart and
therefore have every incentive to report medical errors and mishaps which
they cause or which they witness. However, in reality this is not so since
many in the health care industry give a much higher priority to
"mateship" and the reputation of themselves and their colleagues
rather than the welfare or even the lives of their patients.
The tragic consequences of medicine's cloak
of secrecy and cover ups has recently been brought to light again as a
result of the use of the ineffective anti-miscarriage drug Stilboestrol or
DES (112). In spite of the
fact that this drug was ineffective and was found to cause cancer in the
daughters of the women who used it, doctors continued to prescribe it for
nearly 50 years after its introduction in 1938 (113,114,115,116).
The tragic consequences of DES use draw attention yet again to both the
inability of clinical trials to detect the real life consequences of drugs as
well as the determination with which the medical profession will attempt
to conceal the truth about the hazards of medical therapies. It also
emphasises again just how long doctors may continue to use therapies which
are ineffective.
According to Dunlevy (113)
the use of DES was a "case study in medical arrogance and
bureaucratic timidity." According to Dunlevy (113):
| "Doctors conveniently
lost their patient records about Stilboestrol, lied and said they
never prescribed it and refused to report cases of cancer and
other problems to avoid publicising their error. Sydney
gynaecologist and DES expert Dr Jules Black says his colleagues
have behaved 'shabbily'.
'As I followed each of my cases up, including writing to the
still-living obstetricians for clinical details, I found a wall of
silence among most of them,' he says." |
A further tragic example of this culture of secrecy
and deceit which exists within medicine concerns the deaths of two
patients in a Sydney hospital following operations which were carried out
with the assistance of a drug addicted anaesthetist who sometimes needed
to excuse himself from the operation so that he could satisfy his urgent
need for drugs (70,71,72).
The problems surrounding this case related to the medical secrecy which
was involved. Medical authorities and hospital staff who worked with the
anaesthetist and were aware of his drug addiction refused to reveal this
information (70,71).
Even when the police proceeded with a manslaughter charge medical staff
refused to tell the truth and thereby prevented his conviction (71,72).
Alan White, a policeman involved in the case commented (71):
| "It's my belief, as the
investigation went on, that some people in the medical profession
were involved in a cover-up of Shirley Byrne's death." |
When Sergeant White was asked if the medical
profession had adopted random drug tests which he recommended in his
report he responded thus (71):
| "No, they have not. In my
opinion, it's going to happen again and it's going to keep
happening until the medical profession smarten their act up and in
my opinion we haven't seen much of that." |
Further evidence of the refusal of health
authorities to confront this culture of secrecy and deceit is clear from
the New South Wales Health Department's response to the above matter (73).
Many questions put to the Health Department by the Sunday program (74)
were avoided and remained unanswered (73).
And so the culture of secrecy and cover ups continues.
Then there is the widespread negligence and
mistreatment of hospital patients in the Camden-Campbelltown area to the
south west of Sydney, negligence which was only exposed by the persistence
and determination of a group of whistleblower nurses (75,76,77,78,79).
Although various authorities allegedly attempted to
prevent exposure of these matters and the 20 deaths which resulted (65,66,67,76,80,81,82), even to the point of intimidating
the
whistleblower nurses who all lost their jobs (80,81,82), one inquiry even
concluded there was no cover up in spite of the fact that the cause of the
20 deaths was still being investigated by the coroner (83,84). This was
also in spite of the fact that the Commissioner who conducted the inquiry
noting that the whistleblower nurses had been vindicated (83) "in
their claim that they raised matters which should have been investigated
and which were not investigated." The Commissioner also
criticised a previous investigation which, although substantiating the
allegations, found that (83) "no individuals were accountable."
The most disturbing aspect of
this whole matter is the systematic and callous way in which the
whistleblower nurses were allegedly bullied, harassed and victimised by colleagues
and medical authorities (80,81,82),
actions which would suggest there was a determination to punish any nurse who told the truth.
Any attempt to prevent the truth from being publicised clearly suggests
there was more concern about the reputation of medical staff, and/or the reputation of the
hospital, than there was about the lives of dying patients. An
investigation revealed that the hospitals involved (80)
"had a culture in which the nurses who complained of poor care
were investigated, bullied and, in some cases, sacked." As was
also reported by Paola Totaro and Ruth Pollard
(82):
| "But those staff who were
considering reporting their concerns about the failures watched
helplessly as the whistleblower nurses were sidelined and
victimised, their jobs placed in limbo. It was also widely known
that five key doctors who would have had detailed information
about the complaints had not even been interviewed." |
Even management was involved in this apparent
conspiracy of silence, deceit, and intimidation with the chairman of the
South Western Sydney Area Health Service apparently attempting to silence a
politician (82)
while also claiming that whistleblower nurses had (82)
"psychiatric problems." So severe was this victimisation that both the Minister for Health
and the Premier of New South Wales were ultimately forced to apologise
(77,81).
The abuse of psychiatric assessments to
discredit and silence whistleblowers who merely wish to tell the truth is
unfortunately a popular practice by those whose shame or guilt results in
deviousness and dishonesty and a determination to conceal the truth (87):
| "Stories from
whistleblowers suggests that a repeated and highly consistent
aspect of the whistleblowing experience is the abuse by the
employer of medical and psychiatric appointments as a mechanism
for intimidating whistleblowers and avoiding the need to address
the real issues.Referral for psychiatric assessment comes after
the whistleblower has persisted in raising a workplace issue of
fraud, corruption or mismanagement which is internally
investigated but not properly addressed. The referral may also
come after the whistleblower has been formally charged with
internal or external disciplinary charges based on a fabricated
wrongdoing and where that charge or those charges have been
dropped."........................."Regrettably,
there are psychiatrists who are willing to give highly
questionable opinion stating 'psychiatric disorder' or
'psychiatric illness' or 'psychosis' as the diagnosis.Even more
disconcerting is the fact that a number of government medical
agencies (supposedly "independent medical advice") have
been willing to accept false and misleading information from the
employer, to pretend that the workplace issues do not exist, and
recommend psychiatric assessment." |
Similarly, according to a parliamentary
address by Senator Murray (88):
| "Experience both in
Australia and overseas has shown that whistleblowers and their
families are often harassed and suffer emotionally and financially
as a consequence of the whistleblower having exposed unacceptable
conduct within the organisation. De Maria and Jan (1994) examined
the experiences of 102 whistleblowers in Queensland. Reprisals
were noted in 71 % of the sample and included: sacking,
psychiatric referral, demotion, being charged and being sued..." |
De Maria has also noted the trials and
tribulations of whistleblowers (110):
| "From Whistleblowing to
the Infrastructure of Dissent"
"From our study into Queensland whistleblowers we know
that most people in the workplace won't report wrongdoing. We also
know that most whistleblower disclosures fail to crack the shell
of misconduct (De Maria; 1994, De Maria & Jan; 1994). What
succeeds however are reprisals. For their public-spirited actions
whistleblowers are shot out of the sky. That's probably not the
best way of putting it. Most reprisals are in cloaked form. They
are very subtle and ambiguous. When halted for inspection the
reprisals can usually look like something else (eg. transfer
because of incompetence).
When we look at the moral, psychological and physical
devastation that is caused when employees of conscience speak out,
and when we note that disclosures tend to lead to
"bad-apple" rather than "bad-barrel"
corrections we must ask ourselves is there a better dissenting
model around than whistleblowing?
In a paper published recently I spoke of the need to avoid
"sterilizing the lone crusader" (De Maria; 1992, pp.
248-261). By that I meant we have to develop a model of community
and workplacing dissenting that is a match for the power behind
wrongdoing, and which does not depend on the current generation of
investigatory agencies. I call this model the infrastructure of
dissent. In it there would be:
(i) whistleblowing as a class action
(ii) development of more public interest lobbies
(iii) full defamation immunity for public interest
dissenters
(iv) incorporating "speak-out" clauses in codes of
ethics
(v) repeal of secrecy enactments
(vi) extensions of FOI into the private sector
(vii) dissenter support networks
(viii) dissenter training programs"
References
De Maria, W. (1992), "The Queensland Whistleblowers
Sterilising the Lone Crusader", Australian Journal of
Social Issues, 27:4, November.
De Maria, W. (1994), Unshielding the Shadow Culture,
Queensland Whistleblower Study, Department of Social Work &
Social Policy, The University of Queensland, Result Release I,
April.
De Maria, W. & Jan, C. (1994), Wounded Workers,
Queensland Whistleblower Study, Department of Social Work &
Social Policy, The University of Queensland, Result Release II,
August. |
It is noteworthy that in spite of
the numerous instances of neglect or incompetence and the tragic loss of
human lives that occurred as a result of the Camden - Campbelltown fiasco there was a determination amongst those conducting the
inquiries not to hold individuals accountable but rather to blame the
system instead (80,82). According to an editorial in the Sydney Morning
Herald (80):
| "Mr Iemma said Ms
Adrian's investigation was procedurally poor, too slow and lacking
specifics on who to blame. All true. But her report also fits with
mainstream thinking on hospital safety by concentrating on
systemic failure, rather than seeking to blame individuals. Her
report offered systemic solutions, rather than prosecutions." |
According to the Australian (94):
| "The 13-month
investigation into 19 deaths at the two hospitals found there were
massive flaws with operator Macarthur Health Service but did not
find a single individual responsible." |
Or, in the words of Paola Totaro
and Ruth Pollard
(82):
| "But not one individual -
doctor, nurse or hospital administrator - was named or blamed for
the litany of tragedies." |
Similarly, according to Martyn Goddard of the
Australian Consumers Association (95):
| "Overwhelmingly, the
reason patients are killed in hospitals is a systems failure
rather than individuals. Ultimately it is the minister's job to
make sure those systems don't fail. By blaming individuals without
looking to his own responsibilities, Mr Iemma is ensuring that the
toll of death and injury for NSW patients continues unabated." |
It seems that according to Martyn Goddard the
reasons for the 10000-20000 annual Australian deaths from medical mishaps
(see Holistic
Medicine Sets the Standard for Safety) are
"overwhelmingly" clear. Furthermore, it would also seem that the
current system of avoiding individual accountability is having the desired
effect and there is no need for change. While patients who kill no one
but themselves, and plumbers and mechanics who kill no one at all, must be
made accountable, this is certainly not so with doctors and medical staff
who deal with peoples lives everyday.
You never know, in future when you return your motor vehicle to the
mechanic for that expensive but faulty repair job he may simply respond;
"it was nothing to do with me - it was the fault of the system. It
was a systems failure."
And this would probably win the support of the Australian Consumers
Association also!
It seems that when medical costs are
excessive individual patients must be blamed and must be discriminated against - there never
seems to be the slightest suggestion that it is the fundamental nature of
the medical system itself which should be changed. On the other hand, when
suffering and deaths are involved rather than costs, it seems we must
avoid at all costs any discrimination or penalty imposed on any
individual, no matter how guilty he/she is. And the cover-ups continue and
the experts wonder why the cost of "health care" is out of
control.
The implications of this desire of medical
staff to regard their professional reputation and that of their colleagues
as being more important than the welfare or even the lives of their
patients, are most grave indeed. Health care will have a disastrous future
while this attitude prevails, irrespective of how many inquiries or
reforms are carried out.
In view of the culture of secrecy, deceit and
mateship which exists in health care today what is needed, in addition to more patient input into the decision making process and a
fundamental change of direction in the nature of medicine and medical
research, are more safeguards and more checks and balances to enable a rapid and appropriate response when things do go
wrong. I refer here especially to whistleblowers, whistleblowers such as
the nurses that brought to light the tragic events in South Western
Sydney. Whistleblowers tend to be conscientious individuals who
are not moulded, suppressed, or intimidated by the system, but rather are
motivated by a deep sense of social conscience, justice and morality (61). Their
commitment to honesty, decency, and justice is such that they frequently
pay an extraordinarily high personal price.
In the
words of De Maria (110):
| "Whistleblowers perform
the absolutely crucial task of exposing secrecy. In their separate
struggles to confront the hydra-headed configuration of official
misconduct, whistleblowers peer between the venetian blinds into a
secret world where power transcends principles; easily, quietly,
confidently. This is not the action of voyeurs. This is vox
populi, forced off the main table of democracy, to pick up the
scraps of information strewn on the floor." |
De
Maria has compiled a detailed bibliography of literature concerning
whistleblowing (111).
As a
society we need to decide which values to support and which direction we
are going to take. At present there is an emphasis upon team players
who condemn individualism and whistleblowing. There is little or no sense
of conscience and there is a callous determination to silence anyone who
is perceived as threatening the team. There is no significant allegiance
to truth and decency. The only allegiance is to the team. As a result,
anyone who seeks to expose medical neglect or mishaps is victimised
ruthlessly - the worse the reported neglect, the more ruthlessly the
whistleblowers will be condemned and the more vigorously the truth will be
concealed. In the still continuing Camden -
Campbelltown fiasco, medical authorities, bureaucrats and politicians were
dragged kicking and screaming into various inquiries aimed at
determining the truthfulness of the nurse's allegations. Eagerness to
learn the truth was apparent only amongst those affected and the general public.
Although Australia does have some so called
"Whistleblower Legislation", in reality Australian governments
have made only a token effort to provide legislative protection to
whistleblowers since current laws (89,90,91)
are largely ineffective and no one has yet been prosecuted for victimising
whistleblowers (88,92).
As has been noted by Sawyer in an article entitled "Let's
Encourage Whistleblowers" (92):
| "Whistleblowers are
typically not protected. Australia, in particular, has failed its
whistleblowers. The first whistleblower act was passed in South
Australia in 1993, and legislation now extends to most states and
territories. There is also narrowly defined federal
legislation.Most of the whistleblowing acts have penalties for
victimisation. For example, the Victorian act of 2001 carries
penalties of up to two years' jail. Australian whistleblowing acts
have considerable diversity of penalties, procedures and
jurisdiction. But they have one thing in common. There has not
been a single prosecution under any Australian whistleblowing act.
Whistleblowers simply do not use the legislation. And with good
reason.The various legislations are not credible, because they are
never enforced. There have been two Senate inquiries into
public-interest whistleblowing. The first inquiry, which reported
in August, 1994, made 39 recommendations, including the
establishment of a public-interest disclosure agency to receive
and arrange the investigation of public disclosures, and to ensure
protection for those making these disclosures. None of the core
recommendations of this inquiry were ever enabled." |
Unlike Australia, America has introduced
effective whistleblower legislation which has enabled the recovery of
billions of dollars in medical fraud (61,92,93).
At present Australian whistleblowers are harassed,
intimidated, bullied and victimised for daring to tell the truth while
frequently those responsible for concealing the truth and harassing
whistleblowers are rewarded or perhaps even promoted. While we reward
deceit and victimisation the future is bleak indeed. Whistleblowers are
the ones who should be handsomely rewarded, encouraged and promoted if we
are to have a decent society and an effective health care system (80).
Whistleblowers should receive effective legislative protection in line
with the vitally important role they play in upholding decent values and
just standards and saving human lives (61,85,86,92). Victimisation of
whistleblowers should be severely penalised.
Conclusion
The case in support of medical rationing and
discrimination against the sick is short sighted and inconsistent with the
traditional healing basis of medicine. It requires an abandonment of the
caring and compassionate basis of the health care profession. Since it is
an economic ‘solution’ to what is a medical problem it ignores the
primary causes of escalating health care costs.
While the incidence of iatrogenic diseases spiral out of control,
suggestions that the inefficiencies and failings of medicine should be
ignored while chronically ill patients are discriminated against on the
basis of cost represents a shameful abandonment of the fundamental
principles of medicine. When such a massive part of health c | |